It’s amazing what a difference it makes to your life, being a cancer survivor!
Regular readers of Nana’s Blog and Facebook friends already know, but if we didn’t specifically share the news with you, well now we can. I am a cancer survivor – a breast cancer survivor.
My diagnosis came about by accident. While I was housesitting for my son and his wife who were on an around-the-world trip for eight months, Lloyd (one of the cats in my care) stuck a toenail in my left “boob” at the beginning of November 2012. When it didn’t heal quickly – within a week – I went to see my GP and a quick examination had me off to get an ultra-sound, then a biopsy and a mammogram.
If you know anything about medieval art, you may already know the “orange peel” texture of the skin occasionally depicted of the breasts of women in great art works fascinates medical experts these days, as a suspected depiction of breast cancer in women and a similar pattern was what alarmed my Doctor. He couldn’t have cared less about the hole the cat’s claw had left in me!
I saw the GP on November 12, had my ultra-sound and biopsy in the following few days and then waited a week for the results. By November 23, it was confirmed that I had Triple Negative Breast cancer and I suddenly had a breast surgeon on my team. My surgery was done December 3 and chemotherapy started in mid January 2013. Private medical insurance is an absolute blessing, when major events like this occur and you want to be fixed, and to get fixed quickly!
The surgical outcome was brilliant, with no complications at all. I had four rounds of chemotherapy over nine weeks, and apart from almost dying from septicemia after my first round of chemotherapy, things went pretty well! My oncologist is pretty laid back but even she said, “You did have us in a bit of a flap there, you know” of my admission to SJOG in Subiaco, after a previous visit to Swan Districts Hospital in an ambulance… When you see the ICU team in your room at 2:00am, you kind of guess things are not going according to plan.
There was another flap when I was bitten on the right arm (in my bed!) by a red-back spider when I was up at Stoneville not long before my last chemo treatment. It was a great pain – literally – and we couldn’t get the final chemotherapy infusion up my arm past the egg-sized lump. In the end, we had to do the chemo in the left arm. Because I had four lymph nodes removed (which all tested negative for pre-cancerous cells) when my left breast was taken off, it really was the last resort to use the left arm. However, we had no choice on the day.
I first wrote this in July 2013: I am on three monthly reviews and feel fabulous!
Not everyone is this lucky, I know, and I am very grateful for the help, support and medical care I have had, in the past six months. It was my support network, particularly on Facebook, which really helped me get through some of the worst days – and shared my best days, too.
In the time since then, until now in December 2015, my medical support has remained unquestionably wonderful.
I didn’t lose my hair from the chemo – but I did have a head shave, for charity. That was rather ironic, actually. My oncologist says I am a freak and that ALL her women patients lose their hair! So, now, I wore lots of turban style hats, (very stylish) while my hair grew back. It was the Great Gatsby look for me!
As it turned out, my head was shaved twice again, each time a year apart, but not for my cancer. Now, at the end of 2015, my hair is lustrous and thick – the best it has been in years. Again, I am very lucky.
A Cancer Survivor’s Blog
On Facebook and Twitter, I am often asked to blog about my cancer journey and about being a cancer survivor. I am giving a few talks at events, too. So, what do I have to say?
In retrospect, this is it:
* be focused around having a great support network (mine is Facebook);
* being positive about your personal survival (even with Triple Negative Cancer, I never thought for a moment I would die);
* totally trust your medical team (they genuinely want you to get well);
* stay away from all the scams that prey on your fears (I mean to say, how much bi-carb water can you drink in a day? Your body sets its own pH levels for different parts of your body and the juice of half a lemon is not going to radically change anything even though it is good for you, overall);
* if anyone hassles you about using marijuana or other stuff and it’s not for you, tell them in no uncertain terms you are not interested and you know what you are doing (the amount of misinformation and scams there are on the internet is just disgusting, frightening and downright criminal)
* have a great plan for getting on with life as soon as you can (mine was getting back to writing) and now I am building a whole new career as at Nutrimetics consultant.
* be prepared for some dreadful days if you are doing chemo or radiation (OMG – you start to wonder if the cure is worse than the complaint);
* have deep and genuine GRATITUDE for everything good in your life and trust your instincts
* don’t become your cancer (it is not you, it is just something that is happening to your body, right now)
I know that not everyone is as lucky as I am – many beautiful women (and men) will not survive or get through their treatment as quickly as I did. I just happened to have a breast cancer that was much more easily dealt with through my surgery than anyone, the surgeon included, expected. My chemo was backup AND an option to kill any cancerous cell that may still be in my body – because with Triple Negative Breast Cancer there are no hormone markers we can track and target. So, we watch, test, and wait.
My blog and my Facebook page are all about being GRATEFUL, eating and sleeping well, having great friends and loving your life, whatever it brings you. A bonus has been a little weight loss, from all the “desired” places and getting back into my wedding dress from twenty eight years ago.
It was my support network, particularly on Facebook, which really helped me get through some of the worst days – and shared my best days, too. I have had amazing support from Facebook friends and through my page at Lesley Dewar and my new business is off to a great start at Stories My Nana Tells
Whatever happens, remember: Every day above the ground is a GREAT day.
Warmest regards
Lesley
Sue Zowty says
I just found you on facebook…and would love to connect. I am from Kamloops, B.C. Canada, and was diagnosed with stage 4 breast cancer. Thank you for sharing your story.
Author says
Hi Sue – thanks for connecting with us on Facebook and on LinkedIn. If you want to chat about your personal status, you can message us privately any time. Warmest regards Lesley
PS: I have been to Kamloops! Went on the Rocky Mountaineer in 2011 – loved it – got great photos and adored the mountains.
2015 update. I am very sad to report my beautiful friend Sue Zowty lost her battle with cancer. She was a brave and inspiring lady, to the very end.
Alexis Avila says
Glad you are with us Leslie. Stay strong and looking forward to hearing more of your stories and adventures!
Author says
Thank you Alexis. There are lots more stories to come, I promise.
Carolyn says
Great to read your story Lesley, Thank you for sharing. I particularly liked the no nonsense approach you had to your treatment, also to the so called cures & causes that are out there. Some things you read are truly horrifying.
I believe that there is no miracle cure for cancer (unfortunately), just the best damn treatment they can give you, for today anyway. Tomorrow they will learn a little more & so on and so on.
Yes the cancer treatments & drugs are a multi million dollar industry, to say they keep us sick, is propaganda, alarmism & a little naivety on our side. Time will be the judge and the only answer.
When people ask me why I think this way, I explain, and this is my belief & my personal opinion only.
Steve Jobs died of cancer, this terrible disease which does not discriminate nor favour celebrity, took a great resource from our world, not that his life is worth any more than another’s. My belief is that a person with that much money, influence & friends in the right places, could have possibly found something to cure himself or access *the cure* then by damn he would have. As it stands his attempt at the alternative route is speculated to have not helped his plight.
I also think you are spot on with attitude being your strongest ally & the support of friends & family being fundamental.
I’m often told that my attitude and strength is admired and am praised for staying so positive. As grateful & humbled as I am by this, I am also curious. I’m not sure I know another way to be, if it was a deliberate choice on my part or if that’s just the way I am, either way it’s nothing special and just what must be done.
Above all else, DON’T become your cancer, it is not you, it is just something that’s happening to your body right now.
I LOVE this.
Thanks again for your share, I hope you will continue to inspire and help others with your strength & zest for life.
I’m proud and grateful to know you.
XX
Author says
Thanks for your comments Carolyn and I agree with you on so many points. Especially the one about being admired and praised for your strength, when, if you are like me, we are just doing our own thing. Surviving, well!! Yes, if alternative medicine could have saved Steve Jobs, I am sure he would have told us all about it. But, like all of us, he made his choice for whatever were his own reasons. I dread to think what he might have paid for treatments which gave him no cure.
I love seeing you on Facebook. It has been my lifesaver in many ways, too, and I am very grateful for it.
Warmest regards
Lesley